Hi everyone-sorry it's taken a while to update. I feel badly when so many people are asking for updates and I can't talk to each of you personally. Thanks first of all to everyone that's been asking how Leo's doing and showing their concern. We do appreciate it, just don't always have the chance to say it to each of you.
So a lot has happened since Leo was admitted on Friday. Most of the weekend was spent stabilizing Leo as his blood pressure when he came in was dangerously low. I knew it was bad on Friday morning when Leo told me that he needed to be admitted. But he's been feeling better since he's been in. Still not spectacular, since he still gets quite dizzy and is very unstable. So on Sunday, one of the ENT's came in a stuck a camera down Leo's nose, as the sinusitis that he was diagnosed with a couple weeks ago has not subsided. (the following might be TMI, so skip forward a couple sentences if you're easily grossed out) They found a HUGE, ummmmm growth (that's the best way I could describe bugar) that was bloody and crusty and basically trying to set up a permanent home on the inside of Leo's nose. I was mesmerized watching the video. I swear, the thing was almost the size of my pinky. It was really gross. So after about 5 different tools were used, the doctor finally got it out and Leo's been breathing much better since. That was probably the only "good" thing that happened since our stay here.
So today, Leo had a procedure to stick a camera down his throat to see what's going on in his stomach and why he's having so many issues. They found some internal bleeding and had to seal those points off to try to stop the bleeding. They don't know exactly where the bleeding was coming from, but they think they were able to stop it. He is actually going to have the same procedure tomorrow so they can make sure that the bleeding was stopped and determine the source of the bleeding. This bleeding is the reason that the blood transfusions he's been getting have not been holding. When he came in, they gave him 4 units of blood and have been giving him a couple units each day, but his counts haven't been holding. In addition to the bleeding, Leo has tested positive for a colon infection, which we were told is likely from the string of anti-biotics that he's taking. So they have to switch up his meds a bit to help treat that. Finally, other tests they performed showed that his sinusitis has gotten worse from what it was just a couple weeks ago. This would explain the pressure and dizziness that he's been feeling. So right now, it seems like all these conditions are snowballing and the team here at the hospital is trying to attack each ailment as it comes. The other good piece of news is that despite all this, Leo's white blood count has gone up to 4.0, which is great considering everything that's happening. So we'll take that piece of good news.
I guess that's about it for now (that's more than enough if you ask me). I will update tomorrow as well when the results of his tests come in. Thanks again to everyone for their prayers and support. We love you guys!
Monday, November 30, 2009
Friday, November 27, 2009
Back at the Resort
Leo was admitted at U of C earlier today. He's been feeling exceptionally crappy this past week and the last couple days were really tough. He hasn't been able to keep anything down, even his Ensure. He's been vomiting quite a bit and has been experiencing quite a bit of dizziness. We knew he had to come in. So we called his doctor earlier and she got him a room. As hard as we've tried to keep him out of the hospital, we know he needs to be here right now until he stabilizes a bit and the doctors can figure out what's going on. Today, they have a bunch of gastro intestinal specialists looking at him. Hopefully they can get to the bottom of things.
Please send some prayers our way today. Thanks. I will keep you posted as things develop.
Please send some prayers our way today. Thanks. I will keep you posted as things develop.
Wednesday, November 18, 2009
Getting better, slowly
Sorry I haven't blogged in a while. Since Leo's birthday, it's been a bit of a rollercoaster for him. He still had some nagging bug that was keeping his counts down to 3.1 or so, and it was very frustrating for us all. He's been coughing like crazy, but they did a scan and his lungs are clear, so they think he may just have a sinus infection of sorts. Given that he's already on several anti-biotics, they want to re-evaluate his meds to see if maybe there's something they can give him that would attack the sinus infection directly. Good news is, just this past Monday, his WBC went up to 4.9! Let's hope that count will stick and continue to rise. He also had another biopsy earlier this week, so the doctors can see what's going on in his marrow. We should get those results by next week.
The biggest problem is getting Leo to eat. He's pretty much not been eating for months. This week, he's trying little things here and there which is way better than the ensure a day diet he was on since back he was in the hospital. We just have to find the right foods for him to take.
Other than that, he's kept fever free and just continues to see his doctors every other day. So let's pray that things continue to get better.
Also, I am going to be scheduling a bunch of Donor Drives in the next month. If you are interested in volunteering this holiday season, please let me know as we will need a lot of extra hands. Also, if your church or organization would welcome a drive, please let me know and we can coordinate.
The biggest problem is getting Leo to eat. He's pretty much not been eating for months. This week, he's trying little things here and there which is way better than the ensure a day diet he was on since back he was in the hospital. We just have to find the right foods for him to take.
Other than that, he's kept fever free and just continues to see his doctors every other day. So let's pray that things continue to get better.
Also, I am going to be scheduling a bunch of Donor Drives in the next month. If you are interested in volunteering this holiday season, please let me know as we will need a lot of extra hands. Also, if your church or organization would welcome a drive, please let me know and we can coordinate.
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