Sorry I haven't posted in forever. Not much has been happening. I will try to post at least weekly to let you know what's going on. Things the last few weeks have been fairly stable. Leo's still be getting transfusions and his counts have been fairly stable. He's put on about 10 pounds in the last few weeks, which is great because he's dropped about 80 since his transplant. He's been getting his appetite back, which is good because it gives him more strength. But overall, he still has to limit the level of his activity as he gets tired quickly.
He is at U of C today getting his levels checked and theywere surprisingly low today. They had to take his blood a second time to make sure it wasn't a mis-read. But it has been verified. His WBC went down to 0.6, after being around 3.2 for a couple weeks. The doctors don't know what's happening, but they're obviously a bit concerned as it dropped so quickly. (It was at 3.2 on Friday). He needed 2 units of blood and 1 unit of platelets so far today and I don't know if they will give him something else. He will be seeing his doctor later, so hopefully they will have some insight as to what is going on.
I will do my best to keep everyone posted.
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You are in my prayers and thoughts.
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