Sorry for the delay in posting. I returned to work this week and was swamped, so between that, going to the hospital and getting the girls ready to start school next week, it's been just crazy. In the early part of the week, Leo was still in pretty bad shape. Anyone that's come by to visit, understands what I mean. Leo was drugged most of the time, as he needed the nausea meds so that he would be able to keep his regular meds down. So he slept most of the time, but he just didn't have energy to do anything, even to just get up to use the restroom. He was still running a fever and his blood pressure was still fairly high. The doctors had determined that his other line needed to come out, as they felt as though that was the source of his infection. He was scheduled to have it out on Tuesday and the plan was to replace with another line. But early on Tuesday, the doctors changed their mind, as some of the specialists had determined that Leo has TTP, which is a complication of his transplant. Don't ask me what it stands for or exactly what it is, but basically his body was attacking it's own immune system. Obviously not a good thing. The treatment for this virus is additional steroid meds, but they didn't want to add more meds to his already over full plate. So what they decided to do is to remove a couple of the meds he was currently taking, as it was feeding the virus. They felt as though the danger of stopping those meds was greater than the danger of the TTP getting worse, so that's why that decision was made. They gave it 2 days. If by Thursday, he didn't start to turn around, they would have to think of plan B. Miraculously, on Wednesday morning, I received a call from Leo and he has started to feel better. He was talking and fever free. So I guess those doctors really do know what they're doing. Each day since then, he's been feeling stronger, so let's hope he's finally on his way up. His doctors feel as though the effects of the cord blood should happen about next week or so. Please keep your fingers and toes crossed for him that it does happen.
We still try not to leave Leo on his own as much as possible as he's still somewhat weak and if he over exerts himself, he has a risk of falling and if that happens and he hits himself somehow, it could be very dangerous due to his low platelet counts. So I'm sending extra thank you's to everyone that's come by to visit and even stay overnight. We really appreciate it!
Enjoy your weekends!
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